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Are you eligible? #BreastCancer Trial Needs #MBC Patients. Written by AnnMarie Ciccarella

There is a breast cancer trial that is recruiting right now for a new targeted therapy. You may be eligible to participate or you may know someone who is eligible. We all benefit from this so I’m asking this be shared in as many places as possible, especially in groups where there is a large population of people with advanced or metastatic breast cancer.

Afraid of participating in a clinical trial. Worried about that lab rat thing? Please click over to this post for a basic rundown. I’ll just say this. When anything other than cells in a dish are involved, protection of humans and animals is taken quite seriously. There are rules in place for the real rats. Seriously.

Do you fit the profile for this trial? Here’s the checklist:

  • Are you post-menopausal? It doesn’t matter if it happened naturally, surgically or through ovarian suppression.
  • Has your cancer spread outside of your breast?
  • Is your cancer ER+ or PR+ (either one will do)?
  • HER2 negative?
  • Have you done only one line of endocrine treatment since the disease metastasized? In English, did you take tamoxifen or femara or arimidex and only one!

All yes responses to that group? Let’s continue. (Yes responses to these questions will likely result in being ineligible.)

  • Have you been treated with chemotherapy since your metastasis? If so, you may not be eligible but definitely check with the researchers.
  •  Have you already been treated with fulvestrant (Faslodex) or everolimus (Afinitor)? If so, unfortunately, you will not be eligible for this particular trial.
  • Has your cancer spread to your central nervous system (i.e. brain mets)?
  • Do you have inflammatory breast cancer?
  • Inflammatory breast cancer patients or those whose disease has metastasized to the central nervous system, this trial isn’t for you. We’ll find others.

There are obviously many other items that will determine inclusion/exclusion but those are the ones that jumped off the page for me.

A little about the trial and what to expect:

  • The length of time for participation is 36 weeks.
  • You will need to be at the test site for approximately 15 visits. This is a multi-center trial. A list of locations is included in the eligibility link below.
  • In the beginning the visits will be frequent and then taper off.
  • There is no cost to you to obtain the drug or any of the testing.
  • Travel may be reimbursed.
  • You will be randomly assigned to receive the real medication or a placebo.
  • All participants will be treated with fulvestrant which is currently one of the standards of care for metastatic disease. My mom is already on fulvestrant but was ready to step right up until I told her she wasn’t eligible.
  • The purpose of this trial is to determine if combination therapy of the fulvestrant and the investigational drug is better than fulvestrant alone.
  • THIS IS THE MOST IMPORTANT PART OF THE POST: You can read more about the study on Trial Reach where there is a link to the complete study information on clinicaltrials.gov.

Why do this? You may be helping yourself. And who knows, this might be the next big thing and you may be part of something that help us finally turn a corner. I’ve participated in a number of trials and I wouldn’t hesitate to join another. I hope you feel the same way. Without us, there will be no advances. Having a trial not meet accrual goals in an expeditious fashion is a waste of precious resources. Closing promising trials because goals are not met is a story for another day. But, it does, indeed happen. And the reason?

Primarily because we simply don’t know we are needed.

Now, you know.

Please do share this! It’s important. Lives depend on it.


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AnnMarie Ciccarella: On the Importance of Clinical Trials

Clinical trials save lives.

Research is where the answers lie.

Without research, there are no clinical trials.

Without clinical trials, people do and will continue to die.

Without people, trials can not take place.

So the real question is this. Have you stepped up?

Too many people equate participation in clinical trials with being a lab rat. Let’s take a moment to dispel some myths or clarify some facts. First the basics.

The very first basic simple truth: Navigating clinicaltrials.gov can be extremely frustrating, even to the most seasoned doctors. Since the very first step is knowing where to look for these things, there are platforms out there to help make the process easier. Social media is changing the way researchers and participants connect. We should be doing this faster, better and more efficiently.

Now some background and general facts.

Clinical trails must adhere to the highest standards to protect trial participants. There are laws in place to ensure the risk associated with any research is no greater than the normal risks inherent in every day living.

When you make a choice to participate in a clinical trial, first and foremost, you will always receive the best evidence-based medical care currently approved and being used to treat the condition or disease being studied.

With those two things in mind, yes, there are risks associated with clinical trials but any new medication that is granted approval to proceed to human testing has already undergone rigorous studies in a petrie dish, on a lab slide and generally, in animal studies. Only after the safety has been established throughout that process, can a drug proceed to trials using real people. Human clinical trials run in phases, too. For this conversation, let’s focus on the last leg of the human trials, the Phase III trial.

By the time a drug is approved for phase III trials, the researchers have already determined its safety, identified most of the short term side effects and it’s already shown the new drug or drug combination may be more beneficial than the current standard of care. And that’s the biggest and most important reason to consider joining a trial for which you may be eligible.

I wish that I had paid more attention to this when I was diagnosed with invasive breast cancer. I know there are trials I would have sought to join. The thing is, the guidelines are set in stone and if you choose a treatment before knowing all of the available options, you can’t unring the bell. You may have excluded yourself from being among the first to gain access to a drug that could take years to become available to the rest of us. The process from trial to results to publication to approval is long.

Few of us are told to look at clinical trials as our best first choice for treatment and when we are diagnosed with a serious disease like cancer, the knee jerk reaction? Get.It.Out. Preferably yesterday. For those whose disease has spread, the sense of urgency takes an exponential leap. And this is the moment to stop. Breathe. Explore every option. And then make a decision.

To paraphrase my friend, Jack Whelan, why settle for standard of care when participating in research may actually be a better course of treatment?


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A story of survival and fellowship

I am always so grateful to have the opportunity to talk with patients at TrialReach; every day I hear stories of incredible courage in the face of devastating disease.

I have to say though, and maybe for personal reasons, the women I have spoken to recently about a Breast Cancer Trial, have really touched me to the core.  This trial is for women who have locally advanced or metastatic disease.

In 1996, at the age of 37, I was diagnosed with breast cancer.  I had two young children and the first thought at hearing the word cancer was that I was going to die and who was going to take care of my children? At the time they were 10 and 6 years-old.  I was very scared and to be honest, fear ruled me for a long time after the initial diagnosis.

Education and insight into the disease were what empowered me and gave me the feeling of having some control over my life. At the time the internet was not the information highway it is today – so armed with pen and pad I went off to the library and took from the shelves every book I could find on breast cancer.  I sat on the floor surrounded with my army of books and started to read through it all. My faith kicked in and gave me the inner strength needed to complete the simplest of tasks.

Some people prefer to hand everything over the doctors – what you don’t know won’t hurt you. I was not one of those people, I needed to do something, I needed to know what I was facing. I wanted to know everything I could about cancer, chemotherapy, radiation, potential options for surgeries.  Why an ordinary cell going about its daily business, turns from a healthy cell to a cancer cell.  What the difference was from a well-differentiated cell to a poorly- differentiated cell and how the rate at which this happens can determine how aggressive the cancer is.  I wanted to know it all, as much as my brain could take, down to the minute detail.  Thankfully, I had a doctor who was very supportive and took hours explaining and drawing pictures so that I understood exactly what was happening.

One of the things I discovered was that my surgeon knew a lot about his specialty – surgery.  He could not answer many of the questions I had about radiation, about chemotherapy or even the pathology.  So I pursued the ones that did know and with my folder under my arm, I started to pound the pavement, knocking on office doors.  I demanded answers to my questions.  I remember one day before one of my biopsies asking to meet with the Director of Pathology at the hospital because I wanted him to know that I was not just a tiny piece of tissue under a microscope.  I was a woman, a wife, a mother, and daughter and that “I” mattered.  So when he looked at that little piece of tissue under the slide he was reminded that what he does matters and that there was a whole family who were invested in me and my need me to survive this.

I could go into the whole story but for today I just wanted to give you some background so that you understood why I am so inspired by the women I have spoken to recently.

First there was Lara, a beautiful young mum who discovered her breast cancer at 30 years old when she was pregnant with her second child.  She was sent a gift of beautiful scarves that had been worn by another survivor, with a message of hope: “You can do this”.  After she had completed her treatment, she passed those scarves along to other women.  The wish was that when a woman wraps a Hope Scarf around her head she would feel the strength and determination of the women who wore it before her.  With that “Hope Scarves” was born.  Please feel free to go to the website where you too can read about the organization, tell your story or request or donate a scarf to this amazing cause www.hopescarves.org.

Another cancer advocate I admired greatly researches all kinds of state-of-the art treatments and clinical trials for her husband who is living with breast cancer. She herself is a warrior for the cause and will not sit down and let cancer take from her the life she has come to know and love.

Many of the women have come together and started Facebook groups.  A lovely lady invited me to become part of her group “Breast Cancer Champions”. An extraordinary group of women reaching out with open arms to support others who are living with the breast cancer diagnosis.

Others have become bloggers and tweeters.  A wonderfully inspiring, enthusiast I spoke to, AnneMarie, really hit me with her story and I connected with her immediately.  She is a fierce advocate, activist and blogger.  She is the epitome of a woman empowering others to stand up and fight cancer.  She attends conferences and spends much of her time working with others.  She also has a website dedicated to breast cancer and getting the word www.chemobrainfog.com.  Her blog was voted as one of the best cancer blogs in 2014 by Healthline.

There are many people out there looking, fighting, disrupting and calling for change.

Lastly, I would like to leave you with this thought.  When speaking to a lovely woman recently, I asked her what it was that made her want to participate in a clinical trial and what she had to say left me speechless, she said “I thought of all the millions of women that have participated in clinical trials before me so that I could get the treatment I have today”.  It really made me think – I may not even be here today if it was not for all those women, and for that I say “thank you”.

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“Be the change that you wish to see in the world.”

― Mahatma Gandhi

 


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TrialReach Raises $13.5M Series B Led by Smedvig Capital

We’re excited to announce that we have raised  $13.5M in a funding round led by Smedvig Capital. This will fuel our clinical trial platform growth and expansion into the U.S. You can read the full press release below.

London, U.K. – Feb 5th, 2015 TrialReach, the world’s largest provider of clinical trial information, today announced it has raised a $13.5M Series B financing round led by Smedvig Capital with participation from existing investors Amadeus Capital Partners and Octopus Investments. With one of the biggest digital health rounds ever raised in the United Kingdom, TrialReach plans to use the funds to support the growth of its clinical trial platform and expansion into the U.S..

Founded in 2010, TrialReach is helping to solve one of the biggest challenges in medical research: connecting patients with clinical trials. One in five cancer trials in the U.S. fails to find a single participant, and only three percent of adult patients participate in cancer research, simply because most patients don’t know that clinical trials are an option for them. For pharmaceutical companies, trial delays can equate to over $8M of lost daily revenue per drug, while for patients, delays reduce the number of potentially life-saving drugs that are available to them.

“We have had significant success in the U.S. market to date, and we are confident that now it’s the right time to scale up our team and operations domestically, in order to solidify our leadership position,” said Pablo Graiver, CEO, TrialReach. “Smedvig has significant experience working with early stage tech-enabled businesses. Their hands-on support will accelerate our plans to become the industry standard for pharmaceutical companies seeking patients for clinical trials. We eagerly anticipate the opening of our New York office to jumpstart our business and sales efforts across the U.S.”

Unlike other clinical search sites, the TrialReach platform is designed to aggregate and structure all clinical trial listings worldwide, so that patients can be smart matched with the specific trials for which they may be eligible. In addition, the platform gives trial sponsors the opportunity to describe trials and patient criteria in a non-clinical manner that’s much easier for patients to understand.

“TrialReach’s bold online marketplace approach offers a solution to one of the biggest problems in the pharmaceutical industry – matching patients with clinical trials”, said Jordan Mayo, a Managing Director at Smedvig Capital. “TrialReach’s platform can reach and help millions of patients with chronic and life-threatening diseases, and address a huge and underserved market opportunity. We believe they are well placed to expand rapidly to the significant benefit of pharmaceutical companies, clinical trial practitioners and patients.”

TrialReach is already working with many of the world’s leading health organizations, including the WHO, and more than half of the top 25 pharmaceutical companies are using TrialReach’s platform to support their clinical trial efforts. In addition, TrialReach reaches millions of patients online through partnerships with major health portals including Healthline, Everyday Health and CenterWatch as well as some patient networks such as WEGO Health and CureClick.

About TrialReach

The TrialReach platform is helping to solve one of the biggest challenges in medical research: connecting patients with clinical trials. Our mission is to empower millions of people to participate in clinical trials across the world to develop new medical treatments and find cures faster. TrialReach was launched in 2010 and is based in the U.S. and London, U.K. For more information, visit http://www.trialreach.com.

About Smedvig Capital

Smedvig Capital was founded in 1996 and has invested over £600m of internal capital. They invest £2-15m in fast-growing innovative businesses, backing ambitious teams with the potential to become market leaders.

Smedvig Capital’s model is to invest in a small number of businesses each year, and then commit time to working closely with management, providing advice and hands-on support.

Smedvig invests across a range of sectors; previous and current investments include a number of tech-enabled businesses such as Zipcar/Streetcar, myhomemove, Quill Content and Tusker. For more information, visit http://www.smedvigcapital.com.

About Amadeus Capital Partners

Amadeus, www.amadeuscapital.com, has an 18 year history of successful technology investing. Since its inception, the firm has backed over 90 companies from 10 funds totalling over $1bn in cumulative commitments. Amadeus has a presence in the UK, Sweden, US, India and South Africa and the team has deep experience of technology. Major businesses built by Amadeus include Optos (LSE:OPTS), Solexa, acquired by Illumina Inc. (ILMN), and CSR (LSE:CSR).

About Octopus Investments

Octopus is a venture capital investor who backs talented people with the potential to build big businesses. Our focus is on identifying entrepreneurs and fast growth companies that can scale explosively to create, transform or dominate an industry. The Ventures team has a proven track record of helping build exceptional global businesses, including Zoopla Property Group, Secret Escapes, SwiftKey, graze.com and YPlan. The Ventures team is part of Octopus Investments, one of the UK’s leading investment management companies specialising in smaller company investing, with more than £4.7 billion of assets under management.

http://www.octopusinvestments.com/

Media Contacts 

Sarah Kerruish

TrialReach

sarah@trialreach.com

+44 (754) 636-4484

Jordan Mayo

Smedvig Capital

jm@smedvigcapital.com

+44 (207) 451-2100


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Top Alzheimer’s Voices for 2014

Here at TrialReach, one of our goals is to honor health advocates and highlight those blogs and websites that are working hard to increase visibility for various health conditions. In May, we selected the Top HIV Voices of 2014, and last month, Top Diabetes Voices.

This month we searched for the best blogs and websites for our Top Alzheimer’s Voices of 2014. Alzheimer’s disease affects an increasing number of people worldwide, with a new diagnosis happening every 67 seconds (in the US alone). There is currently no cure, and an even more worrying fact is that the vast majority of clinical trials fail. As a result, participation in research is critical to finding a cure. The efforts of the following advocates in raising awareness are therefore more important than ever before. Thank you!

“Top Alzheimer’s Voices for 2014”

The following blogs and digital influencers all share the interest in documenting the journey of how Alzheimer’s and Dementia affects those in our communities and offer tips and advice on how the best ways to sustain a good quality of life for patients, families and friends.Alzheimers

Mom, Me and Alzheimer’s Blog – This blog has many different types of posts — the older ones give tips on helping your loved one living with Alzheimer’s and the more current posts share the experiences of the writer’s loss of her loved one.  Very inspirational!
Had A Dad – My author’s  father’s 1253-day journey through Alzheimer’s Disease (AD) and my feelings about it. Now my aunt appears to have dementia, so this is her chronicle as well.

Lewy Body Dementia – Tales from my eventful and ongoing journey as a Generation X caregiver for my father and as an advocate for Lewy Body Dementia caregivers.

Blog by Elder Care at Home – This blog focuses on the needs of older adults, caregivers, and family members living with the diagnosis of Alzheimer’s disease, dementia or other cognitive impairments.

Caregiving, Mothering Mother and More – A blog about the guilt, frustrations, humor and sweet times that come with caregiving with a focus on Parkinson’s and Alzheimer’s.

Living in the Shadow of Alzheimer’s – This blog is about life with my husband who was diagnosed with Alzheimer’s and Frontal Lobe Dementia in 2008.

My Demented Mom – My name is Kathy Ritchie and my mom is demented. She was diagnosed with frontotemporal dementia in 2010. She has lost so many memories, words and all of her freedom. Still she’s a happy, loving human being…………. who doesn’t even know my name.

I am an Alzheimer’s Caregiver – My name is Bob DeMarco, I am an Alzheimer’s Caregiver. My mother Dorothy lived with Alzheimer’s Disease. We lived our lives one day at a time. IAAAC is a companion site of the Alzheimer’s Reading Room.

Dealing with Alzheimer’s Blog –  I was diagnosed with Early On Set Alzheimer’s when I was 46 years old. I am now 54 and working in Advocacy to help fight this disease. I speak on a local and national level about dealing with Alzheimer’s while living it. Hopefully, my perspective can and will help others.

Stranger in Our House – Lori shares her honest journey with her spouse’s condition. Heartfelt.

Dementia Diaries: A Journey with Dementia – I began this blog, shortly after my mom’s diagnosis, as a means of therapy to express how I was feeling and what we were experiencing. Eventually, I opened it up to close friends and family members.

Alzheimer’s Speaks – Alzheimer’s Speaks was created.  To bring voice back to the disease in many formats and fashions: while encouraging, assisting, and engaging those in need.

Early Onset – Early onset dementia before age 65. Live life to the fullest and find humor in everyday life.

The Alzheimer’s Spouse – a website I started in July 07, when the shock of what Alzheimer’s Disease was doing to a decades long loving marriage had me in emotional turmoil.

Parkblog-Sliverfox – This blog documents how Lewy Body Dementia has changed my life. It is a continuation of the previous title; “Sharing my life with Parkinson’s and Dementia” because the diagnosis has become more firm.

Surviving Alzheimer’s – Blog run by Paula Spencer Scott, the author of ‘Surviving Alzheimer’s’. It covers some practical time and provides ‘soul-saving’ wisdom for caregivers.

Steps & Stages – An excellent resource for family caregivers run by one of our partners – Caring.com

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Peter: On Waiting and Faith

The Reverend Peter K. is the vicar of my local church. Like so many people in the village, I have been following his battle with cancer for many years. Last year his condition deteriorated significantly and we all waited anxiously to find out if he was going to be able to take part in a promising clinical trial. This is his story….

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As Hillary Clinton famously quoted, “It takes a village.” When Peter K., the vicar of a small village in Worcester, was diagnosed with Chronic Lymphocytic Leukemia (CLL), the whole community rallied. “I never needed a ride to the hospital,” says Peter. “There’s a mission to keep me alive.”

When first diagnosed with CLL, Peter’s eight year-old daughter found him reading a book about cancer in a bookshop. “You don’t have cancer do you?” she asked.  At the time Peter thought he only had months to live, “this was it.” Today, his daughter is 26 and his blood levels are back to normal. The journey, however, has not been plain sailing, to say the least.

Peter is alive today because of the development of new medical treatments. For eighteen years he has been trying experimental drugs and recently developed treatments. “Many times I came to the end of the path when the treatment was no longer working but I stuck in there, hoping there would be another new one.”

Last year Peter had reached, what appeared to be, another dead end. His symptoms were getting worse, “I was living on blood transfusions. You’re aware of the fact that you are living on borrowed time.” But Peter was lucky. He had a consultant who was passionate about medical research and she recommended that Peter apply for a clinical trial of a new CLL treatment.

The process of applying for the trial was nerve-wracking because Peter didn’t have a high enough platelet level to be eligible for the trial. His doctor wasn’t giving up though. She kept giving him more transfusions until his platelet level reached the required 50.  When the nurse phoned Peter with the results, she got quite emotional. “We’re there. We did it!” she told him. Peter says the nurses make you feel like you matter.

The process of participating in the trial made him very weary. “There was so much waiting, lots of sitting around and the knowledge that many of the people participating in the trial just disappear. Mortality is what you’re thinking about. I felt it more strongly this time.”

Peter does not mind being thought of as a patient. “The definition of patient, one who suffers, one who waits is accurate. I think it’s quite a noble word”.

Thankfully, the new treatment appears to have worked as his blood levels are back to normal and the trial team is pleased with his response.  The word ‘cure’ is even being used as a possibility. “It’s taking me a long time to come to terms with the fact that this may be a cure.”

Peter retired as the vicar of eight other parishes in December. He performed one of his last services on Christmas Eve. It’s going to be a difficult transition for him. “You get hooked on people,” he says: “It’s like a drug.  After 40 years I’ll have to go searching for something else to give my life meaning. However, I feel extremely privileged to live in this community – there’s a sense of self as community.”

Peter also feels guilty that he is still alive, when others, including people he has known, are not so lucky.  “I do feel guilty. I’m still here, other patients haven’t got on the trial or even heard about it.  But I also feel very fortunate.”

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2014 Top Diabetes Health Voices and Blogs

At TrialReach, we believe that patient advocates are vitally important to the overall continuity of healthcare at a fundamental level. Last month we celebrated HIV activists and HIV bloggers by launching TrialReach’s “Top HIV Voices for 2014.” The response from these health advocates was amazing and humbling.  We also asked our own social media community to share with us the names of other blogs and communities deserving of the “#TopVoices” recognition by TrialReach.  Today, we continue that mission announcing our celebration of Type 1 and Type 2 Diabetes bloggers and online communities.

TrialReach.com’s “Top Diabetes Voices for 2014”

We asked one of our favourite voices in the diabetes community, Alexis Pollak from I Run on Insulin, to assist us in selecting an amazing mix of top voices. We chose Alexis for many reasons, but this statement on her blog sums it up pretty nicely: “Diabetes advocacy and supporting people with diabetes is my passion.”  Although she wasn’t promised anything for her assistance, she certainly embodies the type of advocates that we are highlighting. So thank you Alexis, and congratulations on making the list yourself!

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The following blogs and digital influencers all share the commitment and focus to live a full and rewarding life with diabetes, while contributing to the much larger global diabetes online community.

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  1. I Run on Insulin – Combining her passion and her career working for a diabetes device company, Alexis has created a very strong network around her, influencing others as a top voice for type 1 diabetes. “I hope this blog allows other people with diabetes and those that care about someone with diabetes to connect, to offer hope, to commiserate, to laugh, and to know that there are other people who get it.”
  2. Rolling in the D – Scott is ‘just a family man with Type 1 diabetes’ but you will quickly realize that this blog is full of personality and humor.  For proof, check out his popular “You Might Be A DOCaholic” blog.
  3. Sweet Success: Life with Diabetes – Kate is a PWD, Type 2.  “Does that define me? Yes and no. I’m so much more, but my blog is about life with diabetes.”
  4. Snack on a Bike – Florian is a German Type 1 diabetic trying to cycle more by offering tips for other cyclists.  This simply designed, but effective platform is rich with images making riding with him on his journey beautiful.
  5. The Butter Compartment – Lee Ann is an active Type 1 diabetes blogger and art therapist using her blog to share insightful posts about the mental health issues associated with diabetes.  What about the name of the blog?  It’s actually where she stores her insulin!
  6. Cranky Pancreas – Bea is a Colombian living in the greater Chicago area. She was diagnosed with type 2 diabetes in April 2001. She also writes for the Type 2 Experience.
  7. Despite My Pancreas – Jennifer was diagnosed with Type 1 diabetes at the age of 7.  This blog shares her adventures in running, cooking and eating with diabetes with honesty and personality.
  8. T minus 2 – Bob shares, among many other topics, his experience living with type 2 diabetes. Check out his popular, award-winning post “The Basis of Self-Esteem.”
  9. Six Until Me – Living with Type 1 diabetes, Kerri is also an author and blogger.  Simply stated, she shares “diabetes doesn’t define me, but it helps explain me.”
  10. Scott’s Diabetes – Diagnosed with type 1 diabetes, Scott shares that he recognizes “the incredible mental struggle of living with diabetes.”  He also co-hosts internet radio broadcast DSMA Live!
  11. Diabetes Ramblings – Sue is a mother of five, wife of one, and a type 2 diabetic blogger. One of her latest blog posts shares what mobile apps she uses to help manage her condition.  And Sue, we love the name change! Congratulations!
  12. Diabetes Mine – “This site was created by patients for patients as a ‘diabetes newspaper with a personal twist.’” Founder and editor, Amy was diagnosed with type 1 diabetes in May 2003 and uses her experience in digital media and journalism to lead this fantastic and deeply insightful, innovative advocacy platform.
  13. D-Mom Blog – Leighann shares her experience of being a mother of a child living with type 1 diabetes (thus, the “d-mom” title) with other parents offering tips and a very deep resource and insight.  She also penned a book: Kids First, Diabetes Second.
  14. My Diabetic Heart – Mike shares his journey living with type 2 diabetes and Congestive Heart Failure. Through his honest blog he reminds us, “the important thing to remember is that no two people experience type 2 diabetes in the same way and, as such, what works for me may not work for you.”
  15. Diabetes Dad – Tom has been known as “Diabetes Dad” for years, even signing all of his blog posts with “I am a diabetes dad.” One recent post acknowledges his social reach– saying he received not hundreds, but “thousands” of messages of support after he shared that he wasn’t having the best day.  His reaction: “Just wow!”
  16. The Angry Type 2 Diabetic – Lizmari is a type 2 diabetes blogger and although her blog name may lend itself to a bit of dismal impression, she promises “I’m not really THAT angry; just some of the time.”  We do love The Moldy Cupcake Award given to those that perpetuate misinformation in the diabetes health community.
  17. This is Caleb – Lorraine shares her stories and the journey of her son, Caleb, who lives with type 1 diabetes.  She started this resourceful blog for parents of those newly diagnosed and she “happy to reach out to them, to provide support and share our experiences.”
  18. Diabetes Sisters – Through their sisterTALK section, Diabetes Sisters host an “outstanding network of women who share their thoughts and feelings about the nuances of living with diabetes in weekly blogs.” Be sure to check out their type 2 diabetes section.
  19. Curemoll – This blog is a “‘life of a diabetic’ and personal/music blog of Mollie Singer and twin sister and Diabetic Angel, Jackie. Normally, Mollie writes about her daily life as a diabetic, how-to tutorials about diabetes, insulin pumps, sensors, etc, and music related blog posts.’”  Mollie was diagnosed with type 1 diabetes when she was 4.
  20. College Diabetes Network – As a resource for college students living with type 1 diabetes, “CDN’s mission is to empower and improve the lives of students… through peer support and access to information and resources.”
  21. Diagnosed Not Defeated – By bringing the African American perspective to the diabetes online conversation, Dr. P’s blog is a great resource for those living with type 2 diabetes. She also is the founder of Black Diabetic Info.
  22. Shell’s Journey – Living with type 2 diabetes, this Australian mum of two wants to “give others hope that it can be controlled and it isn’t a “life Sentence” if you do the right thing.” Her latest blog post is honest and you should read it: Life Can Give You Many Up’s and Down’s.
  23. The Dirty Diabetic – This cleverly funny and poking type 2 diabetes blog recognizes that we aren’t all perfect.  So much so that the author of this blog shares “pictures of all the things we can’t have anymore and a confessions page about cheating on your diabetic diet.”
  24. My Diabetes and Me – Shannon, a type 2 diabetic from Tennessee has the camo and feisty Southern personality that we would expect.  The great surprise is her blunt, realistic view of her journey living with diabetes and she proudly shares her weightloss success as the header.  Great job, Shannon!
  25. Diabetes CGM Blog – Dave, a type 2 diabetic and guru for CGM-Continuous Glucose Monitors, shares his thoughts and experiences on his journey living with diabetes.  Want to nerd out on all the gadgets, be sure to visit this blog.
  26. Rich the Diabetic – Rich lives with type 1 diabetes and is very active in the diabetes community online.  His blog also includes one unique page that helps navigate the sometimes confusing array of Twitter hashtags [ #dblog for example ].

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